January 25, 2016 (Mon) – Groundhog Day, Revisited…

Groundhog DayThose of you that are fans of Groundhog Day, the Bill Murray movie, will get many of the upcoming references. If you are not a fan, or even if you are not familiar with this US-made movie, you’ll probably be scratching your head. But click here if you want a quick synopsis before I totally lose you.

Suffice it say, reliving the same day over and over (in his case for many, many years) is the general theme of the movie. Neverending stairsKinda like the instructions on a shampoo bottle: “lather-rinse-repeat.” Never-ending. This has also been the general theme of my life of late, although in my case for only 6-8 weeks or so. One of the differences is that Phil Conners starts off as an assh…er, jerk, and slowly comes around. Hopefully I Circle loopdidn’t begin that way. Plus, I won’t be buying any whole life insurance policies from Ned Ryerson, or anyone else for that matter. Somehow I don’t think I would qualify at this stage. And no, I am not an expert ice sculpturer, speak French, nor play jazz on the piano. But I do wield a mean remote control that I am gaining additional expertise on every day.

Leather ReclinerNow my recliner definitely has permanent butt cheek marks embedded in the soft leather. This is a result of spending about 95% of my waking hours, day in and day out plopped accordingly. Each day I wake up to the hope that things will have changed and that I will feel incrementally better to where I can begin to get out and around a bit more. And C squaredthen I get up out of the recliner to head back to the bathroom and run out of breath. Unfortunately that is about the extent of my energy level which is being affected by the big C, or the big C plus the other C (chemo). Some days it feels like they are ganging up as C-squared. Hopefully one of these days the 6am “I Got You Babe” alarm will change to “Happy” and things will fall into place as they should.

I have been able to get out on a not-so-regular basis to walk laps around my cul-de-sac. I don’t do so well with hills soWalk cul-de-sac I am sticking to flat terrain. Talk about Groundhog Day, going around the same block lap after lap. However, don’t let it be said that I allow myself to get locked into such a tight regimen. Occasionally, now don’t faint, I shake things up by, ready for this? – turning around and walking in the opposite direction. I know, I’m just a risk taker. Here was my pattern after one day when I really pushed myself for over a mile. Click on the picture for the incredible full effect.

One of the regular daily occurrences is that my buddy Mr. Nausea, seems to want to be my best friend and hang out in the Lurking in the shadowsshadows everywhere I go in the house. Kind of like our dog Bill who follows my wife everywhere. Just when I think I’ve lost him, he taps me on the shoulder and says, “eh, not so fast buddy.” Funny how (OK, maybe not funny) the day of and the day after my chemo treatment seem to be the best days. Mr. N doesn’t seem to join the party until a few days after, and then like any unwelcome guest, never seems to know when to leave the party. I can deal with him but it’s the lack of appetite that seems to follow him around that is more of a challenge. I’m still struggling to at least hold my weight steady, even at 30 lbs less than normal. But forcing myself to eat seems to bring Mr. N out of the shadows and in my face. It’s a delicate balancing act.

DraculaA week ago when I had my regular blood work done just prior to my chemo, the onc-doc was going over the results. He asked me if I had been bleeding a lot somehow. Despite being on Lovenox and susceptible to bleeding, my answer was a negatory. Apparently I was a quart low Blood drawand anemic. I’m guessing Dracula was sneaking into my bedroom in the middle of the night for a little snackie-poo. So, they arranged for me to come back the next day (now two days in a row) for a blood transfusion. Never had one of them puppies. They had to cross match my blood to be sure I wouldn’t reject what they were going to give me. BC (before cancer), I used to donate blood regularly and I was up to about 8 gallons total. I guess it was about time to get some of that paid back. Unfortunately they must have had a donor with regular headaches because that has been added to my daily regimen ever since.

On the good news/bad news and good news but bad news front, I contacted Massachusetts General Hospital in Boston regarding the EGF816 clinical trial they have going on. Initially with my history they feel I might qualify for the trial and have invited me back for a consultation Boston snowwith the onc-doc running the program. This was the same doc I was trying to get my insurance to cover to visit for a second opinion, which they denied. So now, because of the trial, I get my free consult whether or not I end up in the trial. So that is pretty darn good news. The bad Boston flynews is that it is in Boston. In the winter. The other bad news is that I am not quite travel capable right now with my energy level but I am hopeful I’ll be able to at least build up enough energy for the trip and try and time it so they are not getting 2 feet of snow. Possible good news is that I might qualify for the trial. The bad news? You guessed it. It’s in Boston. And if I qualify, it will mean many trips out there for the duration of the trial. Guess I got spoiled with my last clinical trial being only 20 minutes driving distance away. I wonder if the airlines offer discounts for bulk purchases?

GlowbodyNow halfway through my 6-cycle (once every three weeks) chemo treatment regimen. And I have my glow-in-the-dark PET scan scheduled for Feb 5th, the day before my birthday. We’ll see what that shows. And the week following that will be my 3rd Cancerversary Celebration. Lots happening. Oh, and probably with my next blog, I’ll be posting a link for those of you that want to support Team Craig – Get Fuzzy again this year at the Breath of Hope Walk, either by walking and/or donating to support The Moores Cancer Center. Stay tuned.

Definitely business as usual for now and assuredly day at at time.

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Profiles in Lung Cancer – Day 27: Dave Bjork – “It’s all about relationships.”

As you all know, November is Lung Cancer Awareness Month. A bunch of us bloggers have gotten together and are profiling a cancer survivor, caregiver, advocate, or health care professional each day this month. Today, with my second profile, it is my honor to introduce you to Dave Bjork, a fellow blogger (http://davebjork.blogspot.com/) and lung cancer survivor. Here is his story in his own words.

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Who is Dave?
I am a lung cancer survivor, and I am a passionate advocate for cancer research and education. Professionally I’m the Vice President of Development for the National Foundation for Cancer Research in Bethesda, Maryland.  In my role I advocate for funding important research projects led by scientists at places like Massachusetts General Hospital (MGH), MD Anderson, Dana Farber and so many others.  Among the researchers that I am very vocal about, and that are supported by my organization in the area of lung cancer, are Drs. Daniel Haber and Alice Shaw at MGH, and Dr. Jin Jen at Mayo Clinic.

What is your connection to lung cancer?
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In 1998 I was diagnosed with lung cancer. I was 34 years old, married with 3 young boys age 5, 3 and 1, and I had never smoked. I received amazing treatment at Mass. General Hospital by thoracic surgeon Dr. Doug Mathisen among others. I had a lobectomy to IMG_1191remove my lower left lobe, and was fortunate that there was no spread of disease. I have been forever grateful and am committed to advocating for more research for lung cancer.

Describe a typical day
I continually try to educate people that only about 11% of oncology grants are funded by the NIH, and that lung cancer remains one of the most under funded areas of research. There are amazing and committed scientists doing great work that deserve support. I am very active on Twitter and work hard to advocate for the lung cancer community #LCSM.
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Tell us something we’d be surprised to know about you

My wife Missi and I recently celebrated our 25 year wedding anniversary, and we are abundantly proud of our 3 boys Chris (age 23), Mike (age 21) and Pat (age 19).

What do want us to know about lung cancer?
I never smoked, and I hope someday we can finally get past the stigma of lung cancer. I always get asked if I smoked, and it bothers me that people ask me that.

What brings you hope?
I get hope from the research that is being done that is leading to more targeted therapies for lung cancer. And there is hope that we will get earlier diagnosis of lung cancer which will give patients a better chance of survival.

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Thank you Dave! You can follow him on Twitter @bjork5.

Read yesterday’s profile of Christian Nataline by blogger Linnea Olson here.

Tomorrow’s profile of Dr. Alice Snow, also by Linnea, will be available here.

All profiles can be found the day after posting on the #LCSM Chat blog at http://lcsmchat.com/. A list of links to all the profiles on the original bloggers’ pages can be found at on the #LCSM Chat site on the Profiles in Lung Cancer page.

Business as usual. Day at a time.

October 4, 2015 (Sun) – Road, Meet Firestone

For those loyal readers that have been with me a while, you may recall my blog post last Spring about chameleons. Well, today we diverge from lizards, itsy bitsy spiders, elephants and any other animals/insects I may have used in the past. Yes, I know a spider is not an insect. But technically it is an animal. I do work in a science museum dontcha know.  No today, boys and girls, we learn about rubber. And by rubber, I do not mean that we are having the “talk.”

Burning rubberThe rubber I’m referring to is that the material that covers wheels and comes in contact with pavement. One of the online dictionaries defines rubber meeting the road as “at the point in a process where there are challenges, issues, or problems.” When push comes to shove. When the petal hits the metal. I’m sure there are other metaphors but that should suffice. Unless you are not from the US and don’t understand our crazy idioms.

After meeting with my lung-onc-doc to discuss my glow-in-the-dark PET scan results, here is where we stand. Since my right hip was the only area of my body that was giving me any physical grief, it was decided that I should start a radiation series to take care of the two spots that popped up there. Problem being, one of those spots is the same one that I had zapped almost two years ago. So they need to tread lightly and spread out the treatments over 3 weeks with a lower dose to lessen the risk of permanent damage to the bone in Radiation machinethat area. They opted not to nail my left hip since it was not bothering me at the time and it would increase the risk of anemia. So this past Thursday, I began my first of 15 (actually 14 – more on that later) zappings to fry the fuzzies in that area. I’d include a picture but it would be r-rated. So I’ve included a generic one that is pretty close. I was disappointed that I didn’t get any new tattoos as they were able to use the old ones that were still there. The plan, since I had no other symptoms, is to remain on my A-team (AZD9291) drug until the end of this month when I have another set of PET/MRI scans. Hey, I have an idea. Perhaps I can hire the VW software engineers to tweak the PET software so that my scans come up clean. Whaddaya say?

Backing up (that’s a pun, but you won’t get it for a few sentences), I have never felt well ever since returning from SF with that nasty cold. AmoxicillinThe doc prescribed some Amoxicillin (yes, the pink stuff you gave your kids for ear infections) since I was experiencing symptoms of a sinus infection. This past Wednesday, I had to leave work early because I was feeling so, er, here we go again: crappy. On top of it I was developing some stomach discomfort. Aaah! Could it be cancer that showed up in my pancreas giving me a wake-up call? Could it be an ulcer? Could it be a side effect of the Amoxicillin? Could it be constipation? Could it just be a friggin’ stomach ache?Stomach pain

So, I know several co-workers and even a couple board members read my blog, so if you prefer not to feel awkward the next time you see me, you may want to skip the next paragraph. Fair warning.

I took Thursday and Friday off work as I couldn’t get off my recliner. As the stomach issue seemed to be getting worse, my doc prescribed some laxatives to help, er, eliminate, one of the potential causes listed above. Now you get my pun about “backing up.”  And yet the stomach discomfort never really went away. And of course, now my left hip is giving me some discomfort so I am limping like an old man with two bad hips. I know, I know. I am an old man. But some of the pain could be from just sitting on my rear end now for 4 full days. I’m surprised I don’t have bed sores. I tried getting off my duff to walk around our culdesac but I barely made it one loop and had to quit due to fatigue. Now that is feeling old. I find myself getting jealous of anyone doing anything washing-machineeven slightly athletic.

Oh, and I must have rubbed off on our 19-year-old washing machine as it crapped out over the weekend as well. OK, cue the violins. However, getting you to feel sorry for me was not the intent of this blog. Just keeping you up-to-date. And notice I didn’t say cue the harps. We are a long ways away from even thinking about that.

Unfortunately, (oops one more whine – bear with me), because of the radiation treatments, I will have to forego my trip to Chicago next weekend for the LVNG With Ambassador training. Bummer. Don’t think I’d be up to it in any case. Right now I’m more concerned about being able to make our upcoming vacation to Carmel/Pebble Beach. My radio-doc is cutting down my radiation treatments by one day so I can head out on this road trip the day after my last zapping.

kfcIn the midst of all this, I have totally lost my appetite. In fact I have an anti-appetite where just the sight of food makes me gag. Hey, maybe I’m pregnant. So my wifey, my wonderful wifey, brings home KFC (Kentucky Fried Chicken) figuring that if I will eat anything, I’d eat that. Having her sacrifice to stop by such a verboten place is like asking a vegan to stop by the meat market for some fresh steaks. Of course, I couldn’t even take a bite the night she got home. Me not being tempted to eat fried chicken is like Trump avoiding cameras. Never happens. I was able to force myself to make a decent dent in it the next day but overall I’ve lost 5 lbs in a week. My doc is not going to be happy. But my pants thank me.

I was also asked to tell my story for the CancerCommons website so if you are somewhat new to my blog, here is a decent short summary of my journey up until recently.

Stay tuned as things could be changing in the next few weeks.

Business as usual. Day at a time.

July 27, 2015 (Mon) – A Triple Decker of Tasty and Not-So-Tasty Morsels

Triple Decker SandwichMy wife knows I love club sandwiches. She will invariably guess correctly when we go out to eat at a casual restaurant if a club sandwich is on the menu. What can I say? I like predictability and knowledge that I will enjoy all ingredients included in said sandwich. Call it comfort food. Or call it a boring husband.

Yet, my journey to date has been anything but predicable. Hopeful yes. Predictable? Not usually.

Thus begins my quickie (don’t go there) summary of my most recent triple decker sandwich, aka my set of 3 scans last Friday. Unfortunately not all ingredients were mouth watering. Smacking my lips and gagging at the same time – now that’s a lunch entree that would result in a nasty Yelp review.

BaconLet’s start with the bacon: My brain MRI came back, once you got through all of the medical gobbledygook, as “No significant change right cerebellar metastatic focus when compared with most recent exam...” Obviously not written with proper grammar in mind but I will forgive the transgression this time. Bottom line: upstairs fuzzy is hibernating, hopefully like Rip Van Winkle. Yea!

Triple mixtureNow mix some castor oil with pureed Brussels sprouts. I had no idea there was an “s” on the end of Brussel, did you? Squirrel!  In any case, make a nice paste with those two ingredients, perhaps add some Vegemite for texture and spread on your sandwich. That would be my kitty-cat (CT) scan of everything else. Again, skipping over the impossible-to-decipher technical jargon, here is what you get: “Progressive malignancy in the lungs and mediastinum. Suspect enlarging renal metastasis.” That’s where the gagging kicked in. But I was mentally prepared based on recent history and had my virtual barf bag handy. So no cookies were actually lost in the process. Bottom line: same ‘ol, same ‘ol story when compared to the scan results for the last 3-4 scans. Continued growth in the fuzzy boys below my noggin.

Triple mixture 2Finally, layer some Limburger cheese with anchovies and sprinkle some ground up ghost peppers (those that know, know) for good measure and you have completed my meal. Some of you might actually like this. Yeech. This last set of ingredients comprised my third scan – my shoulder MRI which, when chewed up and digested down to words I could understand, came out like this: “Magnetic resonance imaging of right shoulder demonstrates features (‘features?’ Really?) of an active inflammatory phase of adhesive capsulitis. Nonspecific focus of signal hyperintensity and replacement of fatty marrow within the coracoid process Frozen Shoulderpossibly reflecting a metastatic focus given the patient’s history of lung cancer. This focus may be mildly sclerotic on CT. Stress remodeling of the coracoid process is thought to be less likely.” Bottom line: Looks like I have a case of “frozen shoulder” which will probably be treated by an ultrasound guided injection of steroids directly into the achy area. Then most likely continued home PT rehab. Problem being that this may not be allowed under my current AZD9291 (A-team) trial. We shall see.
Ashes

And if you nuke this sandwich to just charred remains, as I would suggest you do in any case, you may get what is alluded to in the last paragraph as “reflecting a metastatic focus…” So there is a possibility that not only do I have a frozen shoulder, but a fuzzy with a parka is hanging out in the tundra. The plan is to keep an eye on it and perhaps do another MRI on my shoulder after having received the steroid stab. Maybe it’s just an empty igloo. Stay tuned.

Had my regular lung-onc visit today but was seen by a sub since my regular onc was out of town. So, although he was not in a position to prescribe any specific course of action, he was pretty certain that we will be staying on the same route for at least another 6 weeks. He was especially happy that all of the parts he checked out seemed to be in fine operating condition. Obviously he did not check out all of my parts…

Business as usual. Day at a time.

July 18, 2015 (Sat) – Why Me? If Only. And Other Time Wasters

why-meEarly in a cancer patient’s diagnosis, the “why me” pops its ugly head. I say ugly because no good comes from asking that question. Some of us quickly get past that futile endeavor while others have a tough time shaking it off. Certainly lung cancer can have some obvious direct causation connections: smoking, long term asbestos exposure, even living in an area with high levels of naturally occurring radon gas. Yet many of us without any obvious causes have to accept the fact that life can be random. Roll of the dice. Luck of the draw. Turn of the wheel. Mutant gene. Who knows? And more importantly, should I care? No. It is what it is and stressing over what might have caused it just takes energy you need to weather the storm.

if-onlyIf only is not any better.

If only I had built a better wall with my cereal boxes when I was a kid sitting at the breakfast table with my smoking parents. I would surround my bowl and duck Cerealsmy head into the enclosure with boxes of Sugar Pops, Sugar Frosted Flakes and Sugar Jets forming a barrier. Now that I think about it, it’s more surprising that I don’t have diabetes with that diet. Yes, those were the actual names of the cereals back then when they weren’t so PC health conscious. I can almost guarantee they have just as much sugar these days but that is a bad word now. But perhaps second-hand smoke from 50 years ago was the culprit.

JointIf only I hadn’t partaken in college. Could that have caused the bad boy fuzzy that sat around for 40+ years and just now decided to rear its ugly head? Would have enjoyed eating the brownie version more anyway.

popcorn scraping 2If only I hadn’t scraped the asbestos-laden popcorn off all of our ceilings in our house. Although I wore a good respirator, maybe something slipped past. Could one of those minuscule fibers that I possibly inhaled been the snowball that got the avalanche started many years later?

But once again, do any of these “if only’s” have any proactive benefit in the healing process? Of course not. So why waste what valuable time I have in doing something so detrimental? Not gonna.

What ifNow “what if,” “if only’s” cousin, can play both sides of the fence. If used looking backwards, it takes the same shape as “if only” since wondering what might have been is wasted breath. And trust me, wasting breath is the last thing you want to do as a lung cancer survivor. But if you use “what if” looking forward, it can have a positive benefit, as long as what follows that phrase are actual steps taken. What if I am able to get into that clinical trial? What if I spend more time Googling new treatment options and bring them to my oncologist? What if I connect with other NSCLC survivors to compare notes and exchange info? What if I win the lottery? OK, maybe that last one is a bit out of my control but hey, hope is a good thing too. And I have to pay for our bathroom remodel somehow.

Bathroom2How’s that for a segue? Yes, we are biting the bullet once again and are currently remodeling our master bathroom. Only a Bathroom1couple months after redoing our guest bath. And only two years after our total kitchen transformation. I figure if I let my wife keep changing things in the house, she might lay off changing her husband. Or changing him out. So far so good. We were what-iffing whether we should do this remodel, just as we asked that same question two years ago before doing the kitchen. But now, like then, we are looking toward the future and I plan on getting many years of magazine reading time on the new throne. OK, these days it would be iPad reading time, but I think you get the picture, even though you may not want to.


rotary_logoI’m going to cheat and use a “what if” in the past. What if I hadn’t joined Rotary almost 10 years ago? That is not something I want to think about as it was one of the more important, and rewarding, decisions in my life.

Recently I was asked by our incoming Rotary President (Peter) to provide the beginning-of-the-meeting 2-minute inspirational message. It was truly an honor to be asked, especially for Peter’s inaugural meeting. Our club always has the Mayor of San Diego do the swearing-in ceremony so I was sitting next to him at the front table. So how about the Chargers, Mr. Mayor? Nah, we only chit chatted about Rotary Spiel July 2015nothing in particular. But as for my message, the last time I gave one at this club was just after being diagnosed a little over two years ago. It was my coming-out party, so to speak, although I had already started up my blog.

So this time around it was a similar message. If interested in reading the text, you can click on the graphic.

But the major surprise at Rotary was something I never saw coming. My wife had told me she wanted to come to the luncheon and I had assumed it was to hear me give the inspirational message. Yeah, right. Little did I know the true reason.

Here’s the background: many of you know that I have volunteered as a Rotarian “reader” to one of our elementary schools we have partnered with. However, instead of reading, I found I was much better able to keep the 1st grader’s attention by doing simple science experiments. If the students were any older the science would have gotten over my head. There is another Rotarian, Doug, that has been teaching science as a volunteer for many years at another school. So, that sets the stage. Speaking of stage, Doug was sitting next to me at the head table but he did not have a clue as to why. They just asked him to.

The incoming President always has their own agenda for the year and typically has one or two new programs they are introducing. So as Peter was introducing his plan, he mentioned a new science scholarship that they were creating and began discussing what it would be named and in whose honor. So I thought thought “Cool, that’s why Doug is up here. They are going to honor him by naming the scholarship after him. Awesome.” Yet when I turned to see the PowerPoint slide behind me, I saw both my picture and Doug’s. Turned out the scholarship was in honor of both of us, and in a nod to Bill and Ted’s Excellent Adventure movie, it was named “Craig and Doug’s Excellent Science (CADES) Scholarship.” It was jump started by a very generous $30K donation by another Rotarian and is intended to be perpetual. I was absolutely humbled and I must say, wiped a drought-breaking drop or two off my face. Very cool. The scholarship(s) will be given to students that are entering the science field in college.


3-ferOn the medical front, next Friday I will be enjoying a 3-way. OK, get your minds out of the gutter. I’m talking scans here. Of course there will be the usual CT scan of my chest area and the MRI of my brain to check on fuzzies in those locales. But since I have had an ongoing shoulder issue that has prevented me from playing softball, I asked if they could “throJuly scan calendarw in” a third MRI of my shoulder to at least determine what is going on there. I have done PT, and then I’ve rested it for months, to no avail. So we shall see what my options are. I may have the results of the scans by the end of the day on Friday. Stay tuned. And yesterday was my one-year anniversary from entering the A-Team (AZD9291) clinical trial. Yes, I’ve been popping that magic pill for 12 months and I will continue to see how long I can milk this puppy. Although I cannot imagine anyone wanting to milk a puppy…

Business as usual. Day at a time.

June 19, 2015 (Fri) – Into Each Life Some Rain Must Fall

If you haven’t read my prior blog, this won’t make much sense.

I’ve heard this saying before but never really knew where it came from. It actually originated with Henry Wadsworth Longfellow in his poem “The Rainy Day.” But that is kind of a dark and dreary poem, and thus not appropriate, so I will only steal the one sentence.

Soggy spiderAbout that California drought I was hoping would continue? Well, this spider got a little dose of El Nino this past week. Down the spout I washed. Not all the way to the drain but enough to put a damper (oops) on my climbing ability. Essentially, and honestly no surprise to moi, my scans showed continued growth in the various areas (9 locations to be exact) previously showing progression, typically in the neighborhood of 3-4 mm increases. However, my onc-doc was more positive in indicating this growth is still pretty small.

I have been working on budgets at work for the past couple of months and even a few percentage points change couldPercentage be huge. So when I look at the growth in my cancer, I calculate a 30-40% increase in size and that seems gargantuan. However, when you really crunch the numbers, it only equates to 1/10 of an inch or so, thus pretty minimal in the scheme of things. But it’s the trend that is of concern. Each of the last three scans essentially showed this similar pattern. Here’s a cut and paste from the official write-up: “appearance of slight-mild interval worsening of pulmonary metastases and mediastinal metastases.” Whatever happened to the terms stable or resolving? I know, I know. That’s life on the spout.

The upstairs brain fuzzy showed “interval slight increase in size of right cerebellar enhancing lesion now measuring up to 11.1 mm.” Thus, it appears that, as Dr. Frankenstein said, “It’s alive!” Still some question because they apparently used the higher res, or stronger magnet, scan that could account for some of the measurement differential. Rumor has it (since I’m still waiting to hear from my radio-doc) that we will wait until the next scan in six weeks where they will be sure to use the same scan settings. That way we can actually compare fuzzies to fuzzies (ie. apples to apples) to make a better judgement on what might or might not be changing. So, it looks like it will be business as usual until the end of July or so.Singing in the rain

But you know what? Right now I’m spider-dancing in the rain because I am still doing really well. I have no difficulties doing day to day stuff including my volunteer gigs, working 40 hours per week (quit laughing Kim) and golf. I’m not playing softball because of my current shoulder issues but that is unrelated (I hope).

In terms of what is on the horizon, my lung-onc-doc says there really isn’t another magical pill for me in the near future. Apparently the new whiz-bang immunotherapy treatments are not quite there in terms of matching up with my particular situation. If any of my lung cancer peeps out there have more current info, please let me know. As it stands now my next option would be chemo-therapy. And that has me concerned. I know some of you with chemo experience would say, yup, not something easy to deal with, while others would say, eh, it’s no big deal. Everyone reacts differently and it all depends what cocktail you get. I prefer margaritas myself.

Prayer BlanketRecently a friend from our Rotary club presented me with a prayer blanket that her church friends had quilted. Now how cool is that? Thanks Diana. You know, the support I have had over these past 2+ years from every facet of my life has been incredibly amazing. I really think, no, I know, that is why I am doing as well as I am today. Thank you.

And speaking of Rotary, yesterday I had the privilege, as Chair of the Day, of introducing our guest speaker, Karen Possemato, the Chief of Staff at Illumina, here in town. Illumina is all about genomics and how that new cutting edge technology is coming into play in so many areas of our life, especially health care. It was a timely and appropriate talk, especially as it relates to my past and future journey. All very interesting, and encouraging, stuff.

Back to my spout climbing.

Business as usual. Day at a time.

 

June 7, 2015 (Sun) – I’m Just an Itsy, Bitsy Spider

Itsy spiderI’ll be the first one to admit that I’m not the biggest fan of spiders. Right now my wife is reading this and going “Not a big fan? You hate them!” Well, let’s not exaggerate. Hate them? Nah. Afraid of them? Not as long as they keep their distance. But walking through a spider web would definitely send me into muscle-pulling, swatting gyrations wondering where the little bugger was.

Unfortunately what my father passed down to me and my brothers (let’s call it respect for spiders), my son BrownWidowinherited as well. Yet he had the ultimate scare that sends tingles down my spine. See the picture on the right? That is a brown widow spider, something I did not know existed until that fateful day a few years back. If you tap on the picture to get the bigger version, you will not only get a better view of its hourglass signature, you will also notice the white round edge on the perimeter. And that, my friends, is the edge of a toilet bowl. Getting the picture? My son discovered this 8-legger after making use of the facilities in a sit down mode. Now that will give you the heebie-jeebies.

But where does the itsy-bitsy (aka incy wincy) version come in? Not sure if this is a universal nursery rhyme so I will repeat the verse here:

The itsy bitsy spider climbed up the waterspout.
Down came the rain
and washed the spider out.
Out came the sun
and dried up all the rain
and the itsy bitsy spider climbed up the spout again

Now if that does not describe a cancer journey, I’m not sure what does. Each time I feel like I am near the top of the drain spout, along comes a rainstorm (eg. bad scans) that knocks me back. Then a new treatment comes along, whether it’s Tarceva or AZD9291, which dries up all the rain and allows me to climb back up. Now with my new set of scans coming up this Friday the 12th, I am hoping this California drought keeps up.

Business as usual. Day at a time.