May 2, 2014 (Fri) – Surprise, Surprise, Surprise

No cutesy cartoons of Jim Nabors (Gomer Pyle) to accompany this title. Because, unfortunately, the title is referring to news that is not at all humorous and I did not want to make light of a serious turn of events.

Got that call late yesterday afternoon from my onc-doc that I have been anticipating/fretting over regarding the results of Wednesday’s PET scan. Of course, I was somewhere, as before, where the noise was not very conducive to having a conversation. But this time I was able to move to a quieter area. Not sure I wanted to hear what he had to say as I was concerned that the hip discomfort that has been nagging me was a sign of things not-so-friendly coming back.

So the good news is that my hip is not showing any significant change. The bad news is that fuzzy has returned to, not one, but both lungs now, with multiple metastasis (mets). OK, that was a big surprise. I was thinking that at worst case, it might come back at my hip and we would be able to zap it again. ‘Fraid that is no longer an option and the Tarceva benefit seems to have run its course.

So where to from here? Good question. My onc is getting me an out-of-group referral to the lung cancer specialist at Moores Cancer Center. There may be a clinical trial available to me for some alternative treatment. If not, then most likely I will need to begin chemotherapy fairly soon. Of course, just before my daughter’s wedding at the end of the month. Shoulda taken the wedding photos before. Well, my daughter is a Photoshop guru so maybe she can work some magic if it is needed. Otherwise I just might be styling with that beret I modeled in a much earlier blog.

I will keep this blog short as that is about all of the news I have. Obviously I will update it once I have more of a game-plan in place.

And once more, and finally, thanks again to all of you that have supported this Sunday’s Breath of Hope walk. That support is appreciated today more than ever before, and the fact that it is benefiting Moores Cancer Center is even more apropos at this stage. I’ll see a bunch of you Sunday morning.

Business as usual (well, not really). Day at a time (for sure).

 

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34 thoughts on “May 2, 2014 (Fri) – Surprise, Surprise, Surprise

  1. Sorry the news is not better. You’ve been here before, I guess it’s time to get back to work! Thinking about you and the family.

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  2. Craig, thanks for keeping me updated. I wish that the news was better. You continue to be in my thoughts and prayers. I know that another round of chemo is probably the last thing you would want to face, especially with your daughter’s wedding just around the corner. And, if needed, you do look styling in a baret!

    Your friend,

    Ed

    Craig Blower update – Get fuzzy! wrote: > craigblower posted: “No cutesy cartoons of Jim Nabors (Gomer Pyle) to > accompany this title. Because, unfortunately, the title is referring > to news that is not at all humorous and I did not want to make light > of a serious turn of events. Got that call late yesterday afterno” >

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  3. So sorry to read the news. It feels like the air was just let out of the balloon. I know you are down now, but recoveries most always encounter hurdles along the way. It’s another test of your positive resolve that you have excelled at. Keep your head up and your chin down. You will get through this!

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  4. Sorry to hear Craig, but know that with your attitude and the support of family, friends and the Oncology community you will fight it well! Keeping you in our thoughts and Prayers!

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  5. Craig, I have my white band out and look at the band every day with a little prayer. That’s going to continue as always. Good luck, my friend. We always love you!

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  6. Oh dear… so sorry that this is happening… you remain in my daily ‘healing thoughts.’ Will dedicate tomorrow’s 6:30am session to you…

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  7. Not the kind of news we want to hear – all the more important that we walk with you on Sunday to raise $ for a treatment/cure to slay the darned fuzzy – Charlie and I will see you then…

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  8. So sorry for the news, Craig. Keep up your wonderfully positive and “we’re going to fight this” attitude, and your huge band of supporters will continue to surround you with healing thoughts and prayers.

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  9. Beg….as you know, this journey is a roller coaster ride. This is one of the dips but there will be more peaks. Your attitude serves your health well and will be your ally throughout the journey. Can’t wait to walk with you on Sunday.

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  10. Craig,
    So sorry to read the news. You are a tough guy with great spirit. Many prayers are being said for you and your family.

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  11. I’m so sorry to hear about the progression. Are they going to rebiopsy and see if they can figure out how the mutation has changed? There is some good research happening out there. Fingers crossed that you find the right path for you.

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  12. We are saddened that you didn’t get better news. Prayers for you & love to your sweet little wife & to my little cousin (your mom-in-law).

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  13. Hi Craig, very sorry to hear about this change. Due to personal health challenges I have studied food for about 12 years in order to manage my migraines and numbness without drugs. I have been treating my dog who has cancer with healing and cancer fighting foods. I have learned that processed foods were never meant to be put in our bodies as our body is a chemistry lab and works great when the right stuff goes in…as it creates the right chemical response. It is my belief that a lot of these cancer drugs work initially until your body adapts ..then they are less effective…they are treating symptoms…not causes of imbalance in the body. I urge you to consider using nutrient dense food to support your body to try and get to the cause of this imbalance. Green smoothies are fabulous…there are many cancer fighting foods like garlic, turmeric, green veggies, spirulina, etc that you can put in this drink that will go right to your cells to nourish them. Al.you can find lots of info online..and I believe their is a health centre in San Diego. Just my thoughts…if nothing else, this nutrient dense food will support your body during the next phase of your medical intervention. You might want to check out USWellness meats online for grass fed beef and pastured poultry. I feed the beef to the dog as well as us..the grass fed beef has anti cancer gla,s. Sp? In it…very good for us…anyway, I apologies if this goes against your beliefs but I felt compelled to share a bit of my research with you as it must be a very emotional and confusing time. My prayers are with you.

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  14. Craig,

    With all the positive developments in the field that you have already researched, you KNOW that there are more options still out there! Let this new uncle doc know that YOU are the guy they should have trying the new promising options, whether they are still in the research phase or not!

    My own oncologist told me that if the Tarceva stops working so well at some point, they will probably still use it in conjunction with whatever other treatment they’re doing. The thinking is that it may be less effective, but it hasn’t stopped working altogether. Anything that slows down fuzzy is a good thing!

    Sending lots of positive thoughts and prayers your way.

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  15. Sorry to read this news. Talk to your docs about MD Anderson cancer center in Houston. One of the best in the world. Keeping you in my prayers. Come to Houston and I will sow you the town!

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  16. Craig,

    Thanks for update. Not the news we all were hoping for but we are all here praying for you and your family. You give us all strength in how you are approaching this fight and will support you in any way we can.

    Take care.

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  17. Well this is certainly not the best of news. I’m so grateful for so much for you – that you have the best of medical care available. That you have a wonderful, loving family and support system to help you through this. That you have a marvelous attitude. If any of these don’t zap those damn fuzzes, let’s then look to the plan b. plan c. plan d. plan e . . . Sending you the BIGGEST.BOLDEST.BESTEST! thoughts Craig.

    Tammy Seldon

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  18. Yes, that is crappy news – however – you are a “stats” breaker and “odds” beater so I expect that whatever treatment comes your way – your results will surprise many of your doctors in the most positive way! Stay positive! You inspire me. I will be thinking of you during my cancer walk this weekend for women’s cancer cures and treatments!!!

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    • Yes, that is crappy news – however – you are a “stats” breaker and “odds” beater so I expect that whatever treatment comes your way – your results will surprise many of your doctors in the most positive way! Stay positive! You inspire me. I will be thinking of you during my cancer walk this weekend for women’s cancer cures and treatments!!! – Janine B – not Anonymous 🙂

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  19. Just catching up on emails etc and oh my…like you I was not expecting this news. No doubt the weekend walk shot some positive hope into your next plan, be it B or C. Knowing you and your determination you will keep working through the alphabet til some letter gets it right for you. Please continue to remember that “No one fights alone” and prayers for you must be clogging the prayer paths. Hang in there Craig. Prayers and hugs to you.
    Karen “W”

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  20. Craig. sorry to hear of your set back. I know what a rollercoaster ride this is for you and your family. I saw a piece on TV about a Cancer Treatment Clinic that has a unique approach. It is the Phoenix Cyberknife Center and their web address is http://www.phoenixcyberknifecenter.com/
    Don’t know if they can help you but I’ve always taken the “no stone unturned” approach so I thought I’d mention it to you. Sending positive thoughts your way.
    BTW – Just got back from Maui and Coconuts was fab. Missed seeing you there.

    Hang in there. Adrienne Wurster

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  21. Craig, Just drop a note for your information – my husband’s 2nd line treatment after Tarceva was an anti-pd1 (BMS) clinical trial in UCLA Medical Center. There had been a lot of driving involved in those weeks. This drug got a lot of favorable publicity. It worked well for us. I understand the anti-pd1 clinical trial might be available in San Diego too. The exclusion for the trial is brain tumor symptom which finally got back to my husband. Now he is back to Moores going into the 3rd line treatment- chemo.

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    • Shu, thank you for this valuable information. I really haven’t done too much research as of yet as I guess I was fooling myself into thinking the Tarceva would hold up longer. I’ll bone up on this drug. I appreciate the note.

      Reply

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