May 16, 2013 (Thurs) – Livin’ Life. Oh yeah.

I’ve got bad news.

For those of you are wearing the white “No One Fights Alone” bracelets, plan on wearing them a looooong time. So you will be wardrobe challenged indefinitely. I suspect I will be having to replace my band every year or so. For many years. Take that fuzzy. Speaking of Fuzzy, the store manager of the science museum where I work had ordered some “cute” microbe plush toys long before my diagnosis. The tie-in to my blog title is really pretty amazing when you see it. This is actually supposed to be a cancer microbe. Actually it is two fuzzies in one: the bad guy in gray with straggly hairs, which, when you turn it inside-out, becomes the white good fuzzy. OK, maybe not so politically correct. But I’m not sure there is a good fuzzy so I will imagine that to be an invisible, non-fuzzy. Kinda like what happened to mine.

Fuzzy combo

Now, I also promised you a picture, once I got it, of the before and after lung x-rays. Just so you don’t think I was trying to pull a fast one:

Latest Lung

As you can see, the mass in the upper left (actually my right lung) is nowhere to be found in the latest pic. My pulmonary specialist and the uncle-doc are taking credit for this positive result due to the Tarceva medication. As for the upper deck fuzzy, my radio doc is taking credit for that one assuming it was the 5 straight days of brain zapping that did the trick. Sure, let them share the credit. I don’t really give a rat’s patootie what did the fuzz-busting. Patootie? Now that is a fun word. Wish I had invented it. Anyway, as long as fuzzy’s busted.

Now, all of these positive results, as you know from reading prior blogs, come at a price. Not a very expensive one considering the alternatives, but a price nonetheless. Below is a picture of the lead actor in my play (Tarceva up front) surrounded by all of the other items in my arsenal used for combating the side effects that it produces. It’s hard to believe this little bottle is responsible for the drugstore behind it. But I’ve come up with some decent combinations that are holding back some of the rashies/itchies/leather skin etc.

arsenal

OK guys, here is a question for you: How long does it really take you to get ready for bed? Maybe 5 minutes, tops, right? You might brush your teeth (once a week) and take a leak, right? Make that 3 minutes, unless you had a lot to drink. And ladies? 15-20? 30? Wash your face, remove your makeup, lather on cream yadda yadda. Well, I was one of the former. Now I’m a lady. Well, not by anatomy but I now have a ritual that takes me a considerable amount of time to prep for beddy-bye. Wash my face with a special cream cleaner, put on face lotion, slather my arms and legs with another cream, have my wife lather up my back with a new coconut lotion, put on a T-shirt, and finally load up my feet with gobs of Lucerin paste and add the calf-high white socks. And oh yeah, I DO brush and floss every night. All of this is an ordeal for a guy. Those of you in the estrogen crowd are probably not expressing a whole lot of sympathy right about now. But I am getting used to it. And once more, not complaining. OK, maybe a little, but consider it a minor-whine. I’ve got plenty of time for major whining down the road. Nah.

OK, so I went to Costco by myself the other day when my wife had something else going on. BIG mistake not having a chaperone along to keep me in check. So yeah, I splurged and bought a Vitamix blender. How the heck can a blender almost cost $400? Well, mine is not to reason why. It’s to eat healthy smoothies made with kale, sprouts, broccoli, carrots…wait a minute. I spent $400 to eat this cra, er, stuff? The experiment will begin this weekend as my wife has loaded up with all sorts of “goodies.” Goodies would not be my operative word, however. On the way home from Costco I came this close to stopping at In N Out for lunch. Really. A double double would have kinda defeated the purpose I guess so somehow I withstood the urge. So instead I went to KFC. I wish.

Well, gotta save some stuff for another blog. Otherwise you may not hear from me for a while. And I know I’ve been AWOL for a week. But as Loren Nancarrow said, I’ve been busy living life instead of writing about it. I love that quote. However, I plan on doing both for a long, long time. And you all will be major players in that journey. So keep the comments coming. You could be stars in that book everyone keeps telling me to write. 🙂

Thank you from the bottom of my heart for all of the support and encouragement. It has been just amazingly, incredibly, and supercalifragilisticexpialidociously astounding.  Yes, I did have to look up the spelling on that one. But it describes my feeling to a T.

Business as usual. Day at a time.

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20 thoughts on “May 16, 2013 (Thurs) – Livin’ Life. Oh yeah.

  1. Hey Craig, I had lunch today with Nancy Lind and Kathy Silva and we chatted at length about you and your fabulous frolic fumigating fuzzy….well, with wine we were not really that alliterative but you get the point. They both sport white bracelets as of today as well. We agreed that your promising and positive public portrayal via penned prolific prose was, for lack of ANY better words that come to mind right now, a real cool idea. Now on to preparing for your next role…..Father of the Bride! PS…..probably limited sympathies from women for your new nightly rituals….but really wish it was not something you have to deal with…..and I did recognize quite a few products I use on my psoriasis/ dry skin!

    Reply
  2. Great results from the tarceva but I feel your pain with the side effects! And I was nowhere as near as dedicated as you are to the nightly routine. Tarceva worked for me for 18 months but I do remember taking the tablets murmuring under my breathe, I hate you, I hate you!

    But hey, I’m still here. Nearly 4.5 years.

    Gail

    Reply
  3. I would not call your blog “bad news” today! Since I am new to reading your prolific prose, I see nothing but great news in your results! Looks like you will be around to see your daughter walk down the aisle- praise God! BTW- I order Eucerin by the case-full on Amazon for Pete’s step-father. It’s much cheaper that way but I bet you’ve already found your wholesaler-of-choice for all those nightly rituals! You are an amazing writer- this def. needs to become a book!

    Reply
  4. Hi Craig! I ordered a VitaMix the day after I was diagnosed with 3B inoperable NSCLC, and I’ve used it to make one or two veggie smoothies a day almost every day since, nearly 14 1/3 years. A word of advice–start gently with the veggies. Try a smoothie with an apple, a carrot, and a big handful of spinach. Work up to the heavy hitters like kale slowly, once your taste buds adapt. Here’s my usual routine: http://kitchen-parade-veggieventure.blogspot.com/2011/03/how-to-eat-more-vegetables-tip-5.html

    Fruit smoothies with protein powder and seeds (flax, pumpkin, sunflower) and coconut or almond milk taste great for breakfast, too.

    Keep up the good work!

    Kathy

    Reply
    • Kathy, thank you for the great advice. I’ve missed making a lot of mistakes by learning from people like you that have been down this road. I appreciate it!

      Reply
  5. WOOO HOOO Craig! You go get those fuzzies! now no excuse to not play softball in Ottawa in September! Sending you our best wishes and happiest smilies! Dyonous Tammy Zachary and Zoe

    Reply
    • Tammy, the only thing that would keep me out of that game would be budget cuts that don’t allow that travel. Stay tuned. Working on the budget as we speak. Thank you for the positive vibes.

      Reply
  6. CTB…..bought a Vitamix about 20 years ago and it still is humming perfectly. Best investment on a kitchen appliance I ever made. A great fruit smoothie is simply carrots and apples with a little ice. Better than the one you get
    at Jamba Juice. Also, not bad for the occasional margarita!

    Z

    Reply
  7. Terrrrrrrrrrrrrrrrrrrrrrific!! We are keeping our white arm bands on until we see you in person! Home tomorrow around 6:00pm! EZ 🙂

    Ellen Knight 858 774-1589

    Reply
  8. Congratulations on the awesome news that you have those fuzzies on the run. Your enhanced nightly beauty ritual will keep you looking younger than the rest of us old guys. I foresee your book -The Man’s Guide to Keeping Your Skin Smooth as a Baby’s Bottom by Craig Babyface Blower-on top of the New York Times bestseller list.
    Thor

    Reply
  9. Thanks so much for your positive look on life, every aspect of it. I read this blog and smile everytime! I love your sence of humor and am so happy that the “Fuzzies” are missing.

    Reply
  10. Hey Craig, please ask Kim to bring some wristbands to poker for us! You’ve got great news circling all around you and I can’t think of a better read on a Friday. I hope with all those healthy vitamins entering your system you can still gag down some homemade Challah bread!
    Julie

    Reply
  11. Amazing… and wonderful news!!!! Guess this means you & Brett are in for summer softball? What color shirt do you want? asparagus? kale? carrot? Just plain white?
    High 5!

    Reply
    • Assuming this is Steve that wrote this, Brett and I are definitely on board, although I may be missing a few weeks (travel) during the season. White would be an awesome color but putrid green might work based on some of the concoctions I’ll be slamming down.

      Reply
  12. Great news, Craig! As an Italian, I would recommend using olive oil on your skin. You might smell like a salad but a gazillion Italian mothers over the millennia can’t be wrong! Seriously, another product that is new on the market is a Gold Bond cream designed for diabetics who have a variety of skin issues. It might be worth a try. Take care!

    Reply

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